RE: Living with a Dom who has a chronic illness/disability

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RE: Living with a Dom who has a chronic illness/disability - 10/10/2005 10:10:57 PM

maybemaybenot

Posts: 212
Joined: 9/22/2005
Status: offline

Hi Rayne:

I wish you and your Master well. Kidney Disease is a very hard thing to live with. I also have a kidney disease, altho not nearly as serious as your Masters.

I am offering you a link to a site I have found informative and helpful. There is a Message Board on this site and may be a source of support for you and for He. This site is for dialysis, since you mention he may be going thru that first. I will search my files for info on online MB regarding transplants also if it would be of any help to you.

One thing I would like to mention is that you may want to ask your MD if " at home/self dialysis" is available in Austrailia. I do know it is available in Canada and a few other countries, but not the US. There is alot of documentation that this is far more successful than " conventional" dialysis and is done at night while you are asleep. Much more convenient, as well as being more effective, as you diallyze every night and not on a cyclical basis.

http://www.davita.com/bbs/

maybemaybenot

< Message edited by maybemaybenot -- 10/11/2005 4:14:39 AM >

(in reply to Rayne58)

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RE: Living with a Dom who has a chronic illness/disability - 10/11/2005 1:06:42 PM

plantlady64

Posts: 684
Joined: 5/19/2005
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Hello Rayne,
I'm glad you can be strong for your Master when he can't be. I think a good sub wants what's best for her Master and sometimes that's by making sure he's doing what he needs to do to take care of his self. He's very lucky to have you.
Sincerely,
sub suzanne

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RE: Living with a Dom who has a chronic illness/disability - 10/11/2005 5:16:33 PM

Rayne58

Posts: 228
Joined: 2/22/2005
From: Sydney Australia
Status: offline

THANK YOU so much for that link maybemaybenot, I have skimmed the boards and when I have more time I will sit down and read them more thoroughly. It does help to know I am not the only one out there

Master is on home dialysis (peritoneal) and has been for about 4-5 years now. He first got peritonitis in June last year and then the original catheter fell out. The new one worked for a few months but since April it's seemed to be a continuous cycle of infection

He started on oral Rifampicin (antibiotic) yesterday but it's upset His tummy so He's going to try and take it with food and see if that makes any difference. Years of oral pain meds plus a hiatus hernia have made His tummy very sensitive (nausea, bloating

) He has meds to help control it but being diabetic He has to have food regularly and sometimes even the thought of eating makes Him feel yuck. The last time He was ill He didn't eat solid food for 3 days and survived on barley sugars and fruit juice to keep His sugar levels up. In the end I bought some soup in a cup and that seemed to help.

Anyone got any suggestions for light meals suitable for a diabetic with a sensitive tummy.....

(in reply to maybemaybenot)

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RE: Living with a Dom who has a chronic illness/disability - 10/11/2005 5:38:40 PM

maybemaybenot

Posts: 212
Joined: 9/22/2005
Status: offline

RICE... RICE... RICE.. and more RICE !!!! LOL

Seriously Rayne.. Rice meals sound heavy, but they are the best light meals for you when you have a bad stomach... I know he has to be careful with carbs related to the diabetes < i use to be a nurse> But, Chicken rice soup,, home made with celery and carrots and fresh parsley..... Cook some rice in Chicken broth and diced chciken. Cook some rice in beef broth and add a little browned hamburger. There is also a type of noodle called Rice Stick.. you can find it in Asian markets.. It is a very fine noodle and can be cooked in many ways.. It is light and tastes yummy.. I make mine curried , which would not be good for your Master, cooked in vegatable broth with a few teaspoons of ginger sauce is very good and ginger is good on a bad tummy.

I have a good " online friend " who is the Master of Renal diets and can hook me up with some recipes and sites I can send to you. He and I share the same disease and " met" on a message board similar to the one i sent you.. there are a lot of good people who have great info on those type sites. Feel free to post here or e mail me and I will try to help in.
any small way with the Dibaetic/renal diet situation.

Just a thought.. if the antibiotic is upsetting his belly badly, maybe a call to his MD to see if there is another one that can be interchanged. Also.. There is a compounded drug here in the US.... used to treat irritractable nasuea and vomitting, that may also be available in Austrailia. I am pretty sure it would be because it is 4 common medicatons combined into one gel.. that you rub on his wrist and it is absorbed that way. I use to use it on my patients about 1/2 hour before meals and they could eat a little better and not have that dread of food syndrome.

It is called ABHR Gel
it contains A= ativan B= benedryl H=haldol R= reglan

I know the Ativan and Haldol component sound scary, but both are being currently used for treatment of gastric problems. They use them in what is called " out of class" use. Just like Depakote is used out of class to treat people with anger management issues and bi polar disorder, when it's classification is anticonvulsant.
Hope this is helpful.. Good Luck

maybemaybenot

(in reply to Rayne58)

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RE: Living with a Dom who has a chronic illness/disability - 10/11/2005 5:39:28 PM

Rayne58

Posts: 228
Joined: 2/22/2005
From: Sydney Australia
Status: offline

quote:

ORIGINAL: plantlady64

Hello Rayne,
I'm glad you can be strong for your Master when he can't be. I think a good sub wants what's best for her Master and sometimes that's by making sure he's doing what he needs to do to take care of his self. He's very lucky to have you.
Sincerely,
sub suzanne

*smiles* Thank you suzanne

I have surprised myself with just how strong I am when I have to be. Master and I have been together for almost 2 years now. He has said He is blessed to have me in His life. He also says I must really be a pain slut to put up with what I have over that time.

*As you can tell He has a great sense of humour despite all He has to go through!*

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RE: Living with a Dom who has a chronic illness/disability - 10/11/2005 10:25:40 PM

hurtgame

Posts: 2
Joined: 9/25/2005
Status: offline

All I can say is good luck to you both. I am a sub and I have fibromyalgia and endrometrotis. Both can be very painful at times and frequenlty makes sex painful and very difficult to get into some position (ie: like on my knees) I have never been with a master during really serious bouts of these illness (both tend to have bad flairs that can last hours to months to years) I did have a dome for 2 years when endro was bad and he was great!

I give you kottoes for working this out together. I wish the best to both of you!

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RE: Living with a Dom who has a chronic illness/disability - 10/19/2005 6:56:04 AM

Prunesquallor

Posts: 134
Joined: 10/12/2005
Status: offline

quote:

ORIGINAL: Rayne58
Anyone got any suggestions for light meals suitable for a diabetic with a sensitive tummy.....

Ice cream is always useful when you can't eat anything else.

When it comes to hypos, and refusing to take a glucose drink, my daughter discovered that the one thing that would work with me was the sentence: "Ok Dad, I will have to call the ambulance now and they will take you to hospital." The word 'hospital' has an instant effect.

Good luck to you.

(in reply to Rayne58)

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RE: Living with a Dom who has a chronic illness/disability - 10/19/2005 7:50:40 PM

Rayne58

Posts: 228
Joined: 2/22/2005
From: Sydney Australia
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quote:

ORIGINAL: Prunesquallor

quote:

ORIGINAL: Rayne58
Anyone got any suggestions for light meals suitable for a diabetic with a sensitive tummy.....

Ice cream is always useful when you can't eat anything else.

When it comes to hypos, and refusing to take a glucose drink, my daughter discovered that the one thing that would work with me was the sentence: "Ok Dad, I will have to call the ambulance now and they will take you to hospital." The word 'hospital' has an instant effect.

Good luck to you.

Oh yes "hospital" is a dirty word around here too

I do have ice cream here and I make thickshakes with flavoured milk which He can sip slowly if tummy is doing flip flops. I wish He would eat yoghurt but he absolutely hates it even the flavoured ones.

We've given up on the antibiotic it's just not worth it. He is supposed to take it for 6 weeks as a precautionary measure. Imagine feeling like crap for that long plus the time it will take to recover from taking it.

He had an angiogram on Tuesday which has revealed blockages in His coronary arteries. The follow up appointment is next Wednesday when we will find out what will be done - they mentioned either stents or bypass surgery. I hope they choose the stents it is less invasive, even though it will mean more than one stay in the hospital it will only be for overnight as opposed to several days. His back plays up so badly in those beds - after the angio He had to lie still for 2 hours and He was in absolute agony even though they gave Him enough medication to knock out a horse. I stood beside the bed with my hand pushing on His back which was supported by a pillow, that was the only thing which eased it.

The worst thing now is no sex for 3-4 days after the angio - He cheated this morning though and had a blowjob, He figured as long as I did all the work it would be ok. Didn't Clinton say that blowjobs don't count??

j/k

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RE: Living with a Dom who has a chronic illness/disability - 10/19/2005 7:52:21 PM

RosaB

Posts: 319
Joined: 1/10/2005
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<*smiles* Thank you suzanne I have surprised myself with just how strong I am when I have to be. Master and I have been together for almost 2 years now. He has said He is blessed to have me in His life. He also says I must really be a pain slut to put up with what I have over that time.

*As you can tell He has a great sense of humour despite all He has to go through!* >

----------------------------------------------------

Hi Rayne58,

Your Master is truly blessed to have you as his partner. This is the first thread in a long time that really warmed my heart though saddens it a bit because of all the two of you are going through. But the two of you are a testiment to what love is all about. My prayers are with you both and I hope everything works out and your Master's health improves greatly soon.

Hugs to you and your Master,

Rosa

< Message edited by RosaB -- 10/20/2005 4:09:42 PM >

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RE: Living with a Dom who has a chronic illness/disability - 10/20/2005 2:01:55 PM

Prunesquallor

Posts: 134
Joined: 10/12/2005
Status: offline

quote:

ORIGINAL: Rayne58

The worst thing now is no sex for 3-4 days after the angio - He cheated this morning though and had a blowjob, He figured as long as I did all the work it would be ok. Didn't Clinton say that blowjobs don't count?? j/k

When doctors prohibit sex, I often wonder whether they do so with a wry smile. I remember when I had a vasectomy, they told me no sex for three weeks. In the event, we managed 20 minutes. :)

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